Neonatal Death Support

Abigail's Footsteps
The charity aims to improve the bereavement training that midwives receive, and to improve the quality of supportive information that families receive.
Website: www.abigailsfootsteps.co.uk

Bliss
A special care baby charity.
Website: www.bliss.org.uk
Phone: 0500 618140

Emily's Star
The team aim to raise awareness and support for those who have lost children to Trisomy 18 or Edward's Syndrome. They also help children with life limiting and life threatening illnesses by helping to fund specialist medical equipment and days out before it's too late.
Website: www.emilysstar.co.uk

Finley's Footprints
Through social media sites Mel provides information, discussion and inspiration on a variety of topics. Individuals can receive professional support, download resources, purchase products and books. Finley's Footprints also offers training for professionals around the subject of baby loss.
Website: www.finleysfootprints.com

Frankie's Legacy
A charity that aims to raise awareness not just in the UK but worldwide of cleft lip, palate and associated conditions, and stillbirth.
Website: www.frankieslegacy.co.uk
Email: [email protected]

Friends of Serenity
Aims to raise Trisomy 13 awareness, protect sick pregnant women and those who have suffered miscarriage, stillbirth or neonatal death.
Webite: www.friendsofserentiy.org
Email: [email protected]

Foundation for the Study of Infant Deaths
This is one of the UK's leading baby charities working to prevent infant deaths and promote baby health. FSID carries out its aims by funding research, supporting bereaved families and promoting information on how to reduce the risk of cot death to health professionals and the public.
Website: www.fsid.org.uk
Phone: 020 7233 2090

Group B Strep Support (GBSS)
Group B streptococcus (GBS) is the most common cause of life-threatening infections in newborn babies in the UK, infecting around 700 babies of whom sadly 100 die. Group B Strep Support (GBSS) is a UK charity offering information and support to pregnant women and families affected by GBS, to inform health professionals about preventative care, and to support research projects.
Website: www.gbss.org.uk
Phone: 01444 416176

Harry Cunningham Trust
The charity aims to help sick babies, support bereaved families, and increase awareness of vasa praevia in pregnancy.
Website: www.harrycunninghamtrust.co.uk

Hope for HIE Foundation
Dedicated to supporting those affected by HIE - hypoxic ischemic encephalopathy, and raising awareness and educating the community at large.
Website: www.hopeforhie.org
Email: [email protected]

Helping after Neonatal Death (HAND)
An American site that provides information and support.
Website: www.handonline.org

Kaiden's CDH Life
They aim to raise funding and awareness of congenital diaphragmatic hernia (CDH) in babies.
Website: www.cdhuk.co.uk

Lily Mae Foundation
This great charity provides resources for hospitals across the Midlands, promote research and improvements in current practice, as well as improved research in to current causes of stillbirth. They also provide monthly support meetings and have lots of other exciting developments coming soon!
Website: www.lilymaefoundation.org

Little Heartbeats
Raising awareness on PPROM: Which stands for Preterm Prelabour Rupture Of Membranes (when your waters go before 37weeks of pregnancy).
Website: www.pprombaby.blogspot.co.uk
Email: [email protected]

Lullaby Trust
The Lullaby Trust provides specialist support for bereaved families and anyone affected by a sudden infant death.
Website: www.lullabytrust.org.uk

Macy's Memory T
he charity supports local families with genetic/chromosome illnesses with funding towards funerals, headstones, a last wish UK holiday, and also sensory toys and equipment.
Website: www.macysmemory.co.uk
Email: [email protected]

PreemiesUK
An organisation that has literally sent thousands of parcels that contain knitting for preemies to hospitals across the UK.
Website: www.ukpreemies.blogspot.com
Website: www.preemiesuk.co.uk

The Jessica Sherman Foundation
The Jessica Sherman Foundations main aims are to comfort and support anyone affected by stillbirth or neonatal death with monthly support gatherings.
Website: www.tjsf.co.uk

Together for Short Lives
A leading UK charity for children with life-threatening and life-limiting conditions.
Website: www.togetherforshortlives.org.uk

Towards Tomorrow Together
A registered charity offering support offering support to families affected by loss,providing a wide range of resources to support. They also provide resources for hospitals, support meetings for parents, parent mentors to visit the family and training for midwives.
Website: www.towards-tomorrow.com

SIDS and Kids
Dedicated to supporting those affected by SIDS based in Australia.
Website: www.sidsandkids.org

Sudden Infant Death Syndrome and Other Infant Death
For those affected by SIDS.
Website: www.sids-network.org

Unique: The rare chromosone disorder support group
Unique runs telephone and email helplines for new and existing member families and professionals to find out more information about the group and about specific rare chromosome disorders. They have developed and maintain a comprehensive offline computerised database detailing the lifetime effects of specific rare chromosome disorders among our members. They also run local support groups.
Website: www.rarechromo.co.uk
Email: [email protected]
Phone: 01883 723356

Directory Home